EPIS 2021: Data Matters

Data Matters...

To all digital stakeholders

To individual patients

And to the EPIS community

Data matters to all digital health stakeholders – it brings value to patient organisations, patient communities, health systems and society at large. Data also matters to individual patients, but their voice isn’t always heard in relation to how their personal data are collected, used, stored, and shared with them.

As health data is a complex concept, it is imperative that patients and patient organisations are empowered to get involved in ensuring that the patient perspective is systematically embedded in decisions and activities around health data.

To enable this, EPIS 2021 is exploring different matters relating to health data, to answer the following questions:

What is the value of health data to the patient community?
What are the crucial steps on the patient data pathway?
What are the key changes and challenges affecting this?
And how can we as the EPIS community get involved?

EPIS 2021 will take the form of a three-part virtual webinar series, details on each webinar are as follows:



September 9th, 2021, from 15.00 – 16.30 CET



September 23rd, 2021, from 15.00 – 16.30 CET



November 11th, 2021, from 15.00 – 16.30 CET

To participate in EPIS 2021, please get in touch via the following email address:


Watch this space for the outcomes of this year’s event!